Colloque Parlementaire La Fibromyalgie, un autre regard

lundi 6 avril 2009

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• Colloque Parlementaire La Fibromyalgie, un autre regard

  15 juin 2009 23:17

  Bonjour, Pourriez-vous m’indiquer les suites qui ont été réservée à ce Colloque parlementaire ? Peut-on espérer une reconnaissance par l’Inami de cette pathologie ? La détresse physique, psychologique et financière dans laquelle on se trouve ne peut aider à améliorer le quotidien des maladies. J’en veux encore pour preuve la diffusion ce jour dans le magasine de RTL TVI Images à l’appui du document concernant cette maladie qu’un médecin-contrôle a décidé de remettre au travail... Ne peut-on aspirer un jour à pouvoir enfin être compris et épaulé par notre système ... Merci

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  • Colloque Parlementaire La Fibromyalgie, un autre regard 30 juin 2009 18:11, par Muriel Gerkens

    Bonjour,

    Malheureusement, les actes du colloque ne sont pas encore disponibles. Néanmoins, je les mettrai sur le site dès que possible.

    En ce qui concerne le reportage dont vous parlez, cela souligne le fait que les "fibrosceptiques" sont encore nombreux et que le travail à faire sera encore long et important. Il faut en tout cas se dire que les choses commencent à bouger, même si lentement. Le nombre important de médecins conseils présents au colloque est un signe encourageant.

    La proposition de résolution visant à la reconnaissance de la fibromyalgie que je viens de mettre en ligne va en ce sens. Merci de faire vos commentaires en m’envoyant un message via la rubrique "contact", tous les avis sont bienvenus et nécessaires.

    Bien à vous et bon courage !

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  • Colloque Parlementaire La Fibromyalgie, un autre regard 4 juin 2010 11:24, par zhangxiangyu

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    • Colloque Parlementaire La Fibromyalgie, un autre regard 31 août 2010 12:02

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• Colloque Parlementaire La Fibromyalgie, un autre regard

  25 juin 2009 13:24, par Alex

  Bonjour, Pourriez-vous me dire si des actes de ce colloque seront publiés et si oui, où je pourrai me les procurer ? En vous remerciant,

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  • Colloque Parlementaire La Fibromyalgie, un autre regard 30 juin 2009 17:58, par Muriel Gerkens

    Bonjour Alex,

    Malheureusement, les actes du colloque ne sont pas encore disponibles. Néanmoins, je les mettrai sur le site dès que possible.

    Je viens de mettre en ligne la proposition de résolution visant à la reconnaissance de la fibromyalgie, n’hésitez surtout pas à y réagir en m’envoyant un message via la rubrique "contact", tous les avis sont les bienvenus et nécessaires.

    Bien à vous et bon courage dans votre vie quotidienne !

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    • Colloque Parlementaire La Fibromyalgie, un autre regard 14 août 2009 15:43

      Pouvez-vous nous dire où sont les résultats du colloque à ce jour. Je suis en procès en droit commun pour la reconnaissance de la fibromyalgie comme conséquence d’un accident sur le chemin du travail et en procès contre l’INAMI qui m’a déclarée apte à reprendre le travail sans considération pour le diagnostic de fibromyalgie posé par le Dr E Masquelier. Actuellement au chomage temporaire pour force majeur médicale en attendant l’issue des procès. Le résultat du colloque est donc pour moi super important. Merci francoisevilain@hotmail.com

      Depuis 2002, je suis soignée pour fibromyalgie aux cliniques universitaires St Luc par le Docteur Masquelier. Le coût mensuel des médicaments que je dois prendre actuellement est de l’ordre de 150€ par mois, ce montant est à augmenter des frais de kiné, de médecins et psychologue. Pour des raisons financières je dois limiter la prise de Lyrica étant donné le non remboursement par la mutuelle. Ce médicament est remboursé dans les cas de diabètes (si je ne me trompe) mais dans notre cas nous devons payer le prix intégral. Une boîte de Lyrica 75mg coûte aux environs de 50€ et ne couvre pas un mois de traitement, si on augmente le dosage, les prix grimpent au delà de 80€ toujours sans couvrir un mois de traitement. Fait encore plus aggravant est que ce même médicament coûte en France la moitié du prix qu’en Belgique !!! Tant que l’état belge ne reconnaîtra pas la fybromyalgie, les assurances s’aligneront sur cet état de fait et les malades fibromyalgiques ne seront pas reconnus par les assurances. ( assurances "perte de revenus". ) gossiauxcecile@hotmail.com

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    • Colloque Parlementaire La Fibromyalgie, un autre regard 26 novembre 2009 13:45, par JOCELYNE MICHAUX

      Bonjour Madame Gerkens , Nous nous sommes vue le 20 avril pour la journée parlementaire du 20 avril 2009. Je n’ai plus entendu de nouvelles suite à cette journée qui m’avait semblé trés réussie ... Quand pensez vous avoir les actes du colloque ? J’aimerais tellement que cela continue à bouger ... Je suis pleine d’espoir qu’un jour .... NOUS SOUFFRONS TELLEMENT ! Dans l’espoire d’avoir de vos nouvelles , veuillez madame, recevoir mes amitiés les plus sincères. Jocelyne Michaux

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